We invite you to comment: The WSO Stroke Research Committee research recommendations relevant to the WSO mission for Stroke Treatment, Prevention and Recovery

The WSO Stroke Research Committee has been working to establish a set of research recommendations relevant to the WSO mission for Stroke Treatment, Prevention and Recovery.  In establishing these draft recommendations the committee systematically collated, categorized, and reviewed research recommendations from multiple other national, regional, and patient-centered stroke organizations.  The WSO Board members were asked to review and prioritize these research recommendations.  Recommendations were rated on how strongly they definitely should be included among the top recommendations related to the WSO mission.  The top recommendations are listed below:

Stroke Treatment
1. Expand and integrate existing stroke trial networks to accelerate translation
2. Establish stroke centers and stroke units to assist patients with acute stroke

Stroke Prevention
1. Establish a global chronic disease prevention initiative that includes stroke as a major focus among a cluster of conditions
2. Prevent vascular cognitive impairment

Stroke Recovery
1. Standardize the practice of post stroke rehabilitation based on best evidence
2. Evaluate of the best ways to address and improve life after stroke:
            (a) Improve cognition after stroke;
            (b) Help people come to terms with the long-term consequences of stroke;
            (c) Enhance recovery from aphasia; and
            (d) Improve arm recovery and function.


These draft recommendations approved by the WSO Board in October 2014 are now being posted for member and public comment.   At present, we request WSO members and other stroke constituents to review these draft recommendations and post any comments on the BLOG.  Comments will be collated and reviewed by the WSO Research Committee and included in their final report.  We will be accepting comments until Friday, January 23rd, 2015.







If you are having difficulty commenting then please feel free to email your comment directly to carmenl@unimelb.edu.au or on our Facebook 




We invite you to comment: The WSO Stroke Research Committee research recommendations relevant to the WSO mission for Stroke Treatment, Prevention and Recovery Reviewed by Carmen Lahiff-Jenkins on Tuesday, December 23, 2014 Rating: 5

7 comments:

  1. The treatment priorities are important, but they are the wrong way around. First and foremost WSO should promote the use of life-saving treatments throughout the world that are already known to save lives (acute stroke unit care) or improve outcome in other ways (aspirin, thrombolysis). Secondly, I would place objective (1), but reword it as "Integrate research into everyday clinical practice to accelerate translation" - networks are just one way of doing this, and where they do not exist there needs to be a proclamation to simply make research an expectation of everyday stroke clinical practice. Cancer outcomes have changed enormously just by doing this, with and without networks.

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  2. It is great to have these WSO Research Recommendations posted on the WSO Blog. I want to especially thank the members of the committee including Peter Sandercock, Valery Feigin, David Spence, Jeyaraj Pandian, Yukito Shinohara, Matthias Endres and our President Stephen Davis. We look forward to your comments. Happy Holidays.

    Ralph L. Sacco, Chair of the WSO Research Committee.

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  3. @fightingstrokes - http://youtu.be/POK0bseomkI

    We really want to involved with shaping #strokerecovery policy/practises globally.

    Especially, the mental health issues (or the very debilitating emotional problems) associated with coping with life after any kind of stroke.

    We are interested in therapeutic techniques but the methods stroke survivors can utilise to self-manage their physical and emotional difficulties. A reason why Kate Allatt wrote her 3rd self-help stroke recovery book - I Am Still The Same (2014) - http://amzn.to/1AcUiLJ

    Due to our founder's own personal experience (and her subsequent charity work), we are considered as somewhat lay advocates in advising families as to how to practically help and inspire a loved-one in hospital after an acute Brainstem stroke with or without locked in syndrome. See her story - 'Running Free' (internationally published) http://amzn.to/1yS9ATZ.

    We blog about stroke recovery on here http://bit.ly/1stA23V and this blog has been @KateAllatt candid diary since 2011 - http://bit.ly/1BPkxM2

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  4. Stroke Treatment
    1. Expand and integrate existing stroke trial networks to accelerate translation
    It is a good aim, as long integrate really means that. I hope researchers are keen to share their work and competition for funding won’t be an obstacle to this.
    Hopefully the translation will happen with patients involvement, as they know what they need, but not necessarily what’s available and how to access that help. They also know they would like to receive that advice.
    2. Establish stroke centers and stroke units to assist patients with acute stroke. Great. Again, resources might be a problem, but specialized units are good for speedier access to resources and treatment options.

    Stroke Prevention
    1. Establish a global chronic disease prevention initiative that includes stroke as a major focus among a cluster of conditions I don’t know much about this, not sure how is this organized or managed in the health system.
    2. Prevent vascular cognitive impairment That would be a good thing, I presume preventative lifestyle (exercise, nutrition, improving social connections in elderly) changes will be incorporated. Not really sure how you plan to go about this.

    Stroke Recovery
    1. Standardize the practice of post stroke rehabilitation based on best evidence – In my experience, stroke affects each patient in a unique way. For cost purposes and common symptoms management standardized practice works well, but must have some individual rehabilitation (flexible) options.
    2. Evaluate of the best ways to address and improve life after stroke:
    (a) Improve cognition after stroke; neuroscience has made a huge advance in brain plasticity work, which should be considered as part of the core rehabilitation option. Also benefits of exercise, including short bursts of 5-10 minutes x 3 a day
    (b) Help people come to terms with the long-term consequences of stroke; - Definitely. When I’ve interviewed stroke patients in Melbourne, 1 in 20 had any psychological input, and that was just minimal, yet they’ve had to cope with enormous feelings of loss (personality, function, living – couldn’t continue original occupation) and felt a burden on others, including family.
    (c) Enhance recovery from aphasia; and
    (d) Improve arm recovery and function.
    (e) Concentrating on improving balance. Using Wii-balance machines are a good way of doing this initially at home.
    Many of the patients have completely lost their trust in their bodies. Their vision, ability to think, their lack of mobility made them afraid of moving or attempting move, unless an environment was completely safe (which is very rarely true). They were afraid of falling and tripping on the uneven pavement. Dreaded stairs, especially if there was no handrail.
    (f) Screening of visual and motor deficiencies that might make them more likely to fall and train them with exercises that helps with improving those functions.

    I hope this helps.

    Kind regards,
    Erika

    Erika Borkoles

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  5. TIME IS BRAIN.

    Stroke Symptoms Identification/ACT FAST and then Stroke Prevention should be HIGHEST PRIORITY.
    Community outreach is the only way to bring Stroke patients to emergency room as fast as possible so that lives can be saved.

    Stroke has dropped to 5th leading cause for death from it's 4th rank.
    It resonates the improvement in the speed and technologies that treats stroks faster and prevents long term disabilities.
    Clinicians across the world has gained a good grip on stroke care.

    There are two major areas that need focus now.
    1.Stroke Community Education
    2.Stroke rehabilitation (Use of nanotechnology,technology savvy devices to improve functionality in Stroke surviviors)

    Kudos to WSO for creating a worldwide platform creating awareness about Stroke.

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  6. I'm writing to express my profound gratitude to great spiritual doctor i have ever met who has healed me from stroke, I have been stroke down for over 3 years and I suffer so badly for years to an extent my marriage was broken, I meant with different doctors but no one was able to cure my stroke and some of these doctor told me that there's no cure for stroke which i almost believe them but I never knew that doctor muzack is going to prove them wrong which he actually did, i never know doctor muzack but a friend of mine recommended him to me, I found out he was an online spiritual doctor, i contact him directly on his email address tradomedicalhealer@gmail.com, I told him my problems, he told me what to do, which i did and he prepared herbal products and send it over to me here in my country, i took it as he directed for just four days, it was a miracle, I was heal from stroke and I'm even stronger than ever. I know that there are so many people who are passing through different types of sickness and pain try to give doctor muzack a trial, if he responds to you then know that's your problems has come to an end, his contact info +2347037791346,,, tradomedicalhealer@gmail.com

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  7. As a sign of gratitude for how I was saved from stroke , i decided to reach out to those still suffering from this.I was diagnosed of stroke and it was really tough and heartbreaking for me because my family had spend all money they had, the symptoms were terrible, I had difficult speaking , and he always complain of muscle weakness and balance disorder . we tried various therapies prescribed by our neurologist but none could cure him. I searched for a cure and i saw a testimony by someone who was cured and so many other with similar body problem, and he left the contact of the doctor who had the cure to stroke . I never imagine stroke has a cure not until i contacted him and he assured me my husband will be fine. I got the herbal medication he recommended and I used it and in one months he was fully okay even up till this moment Am so full of life. stroke has a cure and it is a herbal cure contact the doctor for more info on drokosunmusa@gmail.com or Whatsapp him on +2349056175191 on how to get the medication. Thanks for reading my testimony

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